Ryan’s Miracle Watch 1/30/18

Ryan’s been staying awake during the night for the past several nights, but got back on track last night. He went to sleep around midnight, and slept until around 5 A.M. Despite the weird sleep patterns and lack of overall sleep, he’s still one of the most handsome guys around. He’s LIVING proof that beauty sleep’s overrated. I’ll be telling that to my therapist during our next session…

Don’t wait for things to get easier, simpler or better. Life will always be complicated. Learn to be happy and grateful right now. Otherwise you’ll run out of time…

 

Ryan’s Miracle Watch 1/29/18

Ryan had another mild seizure this morning, so I’ve decided to add a small dose of Topomax back to his med regimen. Our prayer is this will solve the mild seizure issue. Other than that, he’s been doing really well…well, for a young man in his condition. Let’s just say there’s room for improvement…

Thank you Lord for watching over my boy. Please give me the wisdom and the eyes to watch over him with the same love and care as do you. Amen

On a lighter note:

If we’re not meant to have midnight snacks, then why is there a light in the fridge?

John 8:12   When Jesus spoke again to the people, he said, “I am the light of the world. Whoever follows me will never walk in darkness, but will have the light of life.”

There’ll be no midnight in Heaven, so I’m hoping snacks will be available all the time…

Ryan’s Miracle Watch 1/28/18

We appreciate any and all information/research/articles/suggestions that could potentially help Ryan. Thank you Florence for sending me the link about stem cells.

Florence (a long-time friend of our family…and beautiful singer) also mentioned that her daughter, Annette, suffers from a condition known as idiopathic auto immune hemolytic anemia, or IAIHA; where your body develops antibodies that destroy red blood cells. She’s undergone some treatments, but the family is still looking for one that will effectively and completely rid her of this. Will you please add Annette to your prayer list? Thank you!

Ryan had an excellent day. Started out with his mother watching him in the A.M. prior to her flying out-of-town on business for the week. He always enjoys time spent with her…and she seems to get the most response out of him; smiles, pronounced gazes, etc. He’s such a mama’s boy. Not that there’s anything wrong with that. Anyway, he’s been awake all day, so he should rest well tonight…

Thank you so much for continuing on this journey with him/us…

Ryan’s Miracle Watch 1/27/18

Ryan’s been a little restless since taking him completely off of another med. It may be a sign of withdrawal, or that he actually needs it. We’ll continue to monitor for another week or so, and then determine if we need to add some of the med back to his regimen. At least it won’t be as much as he was getting before…and that’s good news.

Please pray that his body will adjust so we don’t have to add back a dose of the med.

“I ate an entire box of thin mints, but didn’t get any thinner. I don’t think they work.”

Ryan’s Miracle Watch 1/26/18

I wish I could write songs like this…

Mercy Me – Even If

They say sometimes you win some
Sometimes you lose some
And right now, right now I’m losing bad
I’ve stood on this stage night after night
Reminding the broken it’ll be alright
But right now, oh right now I just can’t
It’s easy to sing
When there’s nothing to bring me down
But what will I say
When I’m held to the flame
Like I am right now
I know You’re able and I know You can
Save through the fire with Your mighty hand
But even if You don’t
My hope is You alone
They say it only takes a little faith
To move a mountain
Well good thing
A little faith is all I have, right now
But God, when You choose
To leave mountains unmovable
Oh give me the strength to be able to sing
It is well with my soul
I know You’re able and I know You can
Save through
I know You’re able and I know You can
Save through the fire with Your mighty hand
But even if You don’t
My hope is You alone
I know the sorrow, and I know the hurt
Would all go away if You’d just say the word
But even if You don’t
My hope is You alone
You’ve been faithful, You’ve been good
All of my days
Jesus, I will cling to You
Come what may
‘Cause I know You’re able
I know You can
I know You’re able and I know You can
Save through the fire with Your mighty hand
But even if You don’t
My hope is You alone
I know the sorrow, I know the hurt
Would all go away if You’d just say the word
But even if You don’t
My hope is You alone
It is well with my soul
It is well, it is well with my soul

Ryan’s Miracle Watch 1/25/18

Random Bible Verse of the Day (just open the Bible and blindly point to a verse):

Matthew 16:25   For whoever wants to save their life will lose it, but whoever loses their life for me will find it.

Surrender your life unconditionally to God…

Ryan is so relaxed right now. I pray he’ll always be relaxed…except when God completely heals him…then he can be completely relaxed while being extremely active…

 

Ryan’s Miracle Watch 1/24/18

Update about Fred…Dawna (Fred’s wife) wrote:

Well we had a bit of bad news pathology came back today and it was an aggressive type. However pathology did say they think it has only made it to a superficial state and the doctor thinks that he got it all. They are going back in in a few weeks to make sure. If they didn’t get it all they won’t be messing around and will remove his bladder. This is a very scary thought but for right now we are going to keep praying and remain positive that it’s gone! Please keep praying 🙏🏻

Update about Bernard:

I checked in with Bridget (Bernard’s wife) yesterday, and she said he is sick from chemo.

Please pray extra hard for Fred and Bernard…and Luke…as well as their families. They can ALL use a special touch from God.

1 Timothy 2:1   First of all, then, I urge that supplications, prayers, intercessions, and thanksgivings be made for all people

Ryan’s Miracle Watch 1/23/18

The following joke is the kind I understand:

What’s the difference between bird flu and swine flu? One requires tweetment, and the other requires oinkment.

For those of you with high IQ’s (unlike me), here is some humor you’ll enjoy:

  1. Ratio of an igloo’s circumference to its diameter = Eskimo Pi
  2. 2000lbs of Chinese Soup = Wonton
  3. 1 millionth of a mouthwash = 1 microscope
  4. Time between slipping on a peel and smacking the pavement = 1 bananosecond
  5. Weight an evangelist carries with God = 1 billigram

Ryan and I are about to head off into the wee hours of the morning. We’ll say a quick prayer for y’all and then try to get a bit of shuteye. If, however, Ryan’s unable to fall asleep, we’ll make it more than just a quick prayer…

May God Watch Over You As You Sleep Tonight…and for those of you somewhere else in the world where it’s already daytime, May You Have A Great Day On And With Purpose As God Watches Over You!

 

Ryan’s Miracle Watch 1/22/18

Psalm 5:3   In the morning, Lord, you hear my voice; in the morning I lay my requests before you and wait expectantly.

I’m praying for Ryan’s complete healing this morning, and waiting expectantly upon the Lord to answer my prayer. I also pray for y’all; that you will have the best day ever!