Ryan’s Miracle Watch 4/4/19

Luke Souza Update:

April 4, 2019– GOOD PET SCAN RESULTS

Journal entry by Vickie Souza

Luke’s oncologist sent me a text message this evening to let me know that his scan looks good. YAY! PRAISE THE LORD!  The chemo treatments worked!  btw, I’m so thankful that his doctor sent me a message and took the time while away on vacation with her family.  She also communicated with the UCSF doctor who indicated that Luke will continue with treatments with one of the two chemo drugs until his stem cell transplant. We will know more next week once we are in contact with the UCSF staff.  But the good news is…. the results are in his favor and we can proceed towards preparing for the stem cell transplant. 🙂

Thank you so much for all your prayers! They are working and I know they are giving us strength and comfort through this journey.  God bless you all!

love, Vickie and family

I’m going to plagiarise Vickie’s last lines: “Thank you so much for all your prayers! They are working and I know they are giving us strength and comfort through this journey.  God bless you all!” Her sentiments really reflect ours toward all of you who have prayed for Ryan. He’s still battling something. His fever has returned along with lower O2 sats, which requires some assistance from the ventilator. Today, he had three or four X-rays at different intervals to figure out what is going on internally with his digestive system. They’re looking for some sort of blockage. When I left, they still didn’t see anything, but were about to do another X-ray. It’s really hard seeing Ryan laying there with a fever…
Lord, Please…You know my heart and can fill in the blank for me. Amen

Ryan’s Miracle Watch 4/3/19

Got in to see Ryan at around 9:30 A.M. this morning to find him resting quite comfortably…even though he’s still got a bunch of probes attached to his body. He’s got two new pick lines to supplememt the two that are already being used for pumping him full of fluids. So, initially they were giving him antibiotics to fight pneumonia and pancreatitis and they seemed to be working, for those two things anyway, but not for another bacterial bug which is resistant to the meds they’ve giving him. So, they added another med to combat this latest bacteria. It’s hard to know what wire goes where. Let’s hope they’re doing what they need to be doing, because we’ve been here longer than we have been in the past. It would be nice to take him home in the next couple of days. All in all, the nurse staff taking care of him are doing a tremendous job working to get him better. We’ll see what he looks like tomorrow morning…

 

 

Ryan’s Miracle Watch 4/2/19

Ryan reached two good milestones today.

  1. His fever finally broke, and he’s now at normal to slightly above normal.
  2. He is on room air, and his O2 sat is holding above 96%

Just prior to me leaving his room this evening, however, he threw up a couple of times, so there’s still something unsettling in his stomach. The doctor isn’t too concerned, but has stopped his trickle feed for now to see if the vomiting stops. By the way, when I actually left, Ryan was resting comfortably; still on room air and with a normal temp.

Two steps forward and one step back is still progress, right?

I can’t wait to get there tomorrow to see a much better (completely) Ryan. Until then, rest well my son. Rest well…

Ryan’s Miracle Watch 4/1/19

So, about a week ago I found out that two of Ryan’s nurses in ICU (a husband and wife team) have a daughter with anoxic brain injury just like Ryan, and they have been caring for her in this condition since 2010. Because of this, they understand Ryan’s needs, and he couldn’t be getting any better attention and care. God amazes me with His provision for Ryan’s needs. Thank you Angel and Michael (appropriate names for these two nurses; Angel and “Michael the Archangel”, as I like to call him).

Will you please add Cassandra, their daughter, to your prayers along with those you so consistently pray for Ryan? Thank you!

God is Good!!

Psalm 84:11   For the LORD God is a sun and shield; the LORD bestows favor and honor. No good thing does he withhold from those who walk uprightly.

Ryan’s Miracle Watch 3/31/19

Based on prior visits to the hospital, Ryan would typically be discharged within a couple of days from now, but he’s still got some things going on, so my prediction is…well, I’m not going to predict…

He’s got something going on intestinally, and they’re trying to figure out what it is. My guess is he’s sick of being in the hospital. Heck, it makes me sick being there. I can only imagine how Ryan must feel in his compromised condition.

Anyway, we plod along, hoping and praying for Ryan to get better…now…so he can go home to the comfort of his room…

Proverbs 3:5-6   Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight.

Ryan’s Miracle Watch 3/29/19

God continues to use Ryan’s story to touch lives, and to show me the unfolding of His plan…at least in our small corner of the universe. Tonight, I went to dinner at a place up the street from the hospital, and the GM of the restaurant came over to check on how my meal was, which is typical of a GM to do. An hour plus later, we finished up our conversation and I headed back to Ryan’s room at the hospital. Turns out she had heard about Ryan when he first got injured, etc. There are several important facets to our conversation that I need to sift through and contemplate, so I can write them down coherently. At this moment, I’m pretty tired and feel like I’m about to hit a wall. Please forgive me if I tell you stories again and again, because I’m too worn out to remember telling them to you in the first place…You know who you are…

Anyway, Praise God that He is still revealing wonderful things to me pretty much on a daily basis. It’s awesome (in the true sense of the word) to watch His plan unfolding before my eyes…

Lord, Please continue to heal my boy, and while we’re waiting for his healing, please continue to reveal you master plan to us. Give us a glimpse of what you’re up to. Amen

Ryan’s Miracle Watch 3/29/19

Ryan’s pancreatitis has subsided, so now he’s only got to recover from pneumonia…and he is doing so; again slowly but surely. Currently he’s in ICU, but the doctor monitoring his progress is encouraged at his progress, and considering moving him into the general population (sounds like prison) in a day or so….soon. We’ll miss ICU…really, it’s the kind people we’ll miss, and not being in ICU. We’d rather be home.

Anyway, the good news is Ryan’s getting better and we Praise God for it! Once he’s past this obstacle, it’s onto and through the next…stand up and walk Ryan!

Before signing off, Ryan would like to wish his Auntie Dana a very happy birthday, and hope she has the best birthday ever!!

Ryan’s Miracle Watch 3/27/19

Ryan’s got the most amazing strength! It’s definitely of God. He continues to battle pneumonia, pancreatitis, some sort of blockage in his intestines, low blood pressure and potassium, and dehydration. All this is keeping his temperature, pulse, and blood pressure elevated. He’s got 4 different IV’s going at the same time to remedy these symptoms. Pour guy has had to suffer from needle after needle puncture just to find a vein to insert stints for the IV’s. And yet, he lays (lay? lei?) there calmly, as if to say, “It’s only a flesh wound”, and “Is that all you’ve got?” I admire his resilience. If it were me, I’d be crying like a little school boy who’d just dropped his Fudgesicle on the ground…Yes, that did happen…last year…

Anyway, it looks as though we’ll be camping out here for several more days if not a week or two. Chocolate, Marshmallows and Graham Crackers are on the shopping list for the next trip…

Thank y’all for praying. God’s answering…slowly but surely…

Ryan’s Miracle Watch 3/26/19

A quick Ryan update:

Found out yesterday that along with pneumonia, he’s got acute pancreatitis. Last night, they put him in isolation; meaning before anyone enters his room, they’ve got to put on all this extra hazard wearables like they’re walking into a nuclear waste plant. Heck, I’ve been sitting in here for the past three days with nothing but a t-shirt on…ah, and pants too! Oh the humanity!

Anyway, I just came home to take a quick shower, and will be headed back to sit with him as soon as I sign off…

Singing off….bye!

Ryan’s Miracle Watch 3/25/19

Gonna type as fast as I can, because my computer is dying and is not charging for some reason. Hopefully, I can keep the spelling errors to a minimum. Go thumbs go!

Anyway, the reason for not posting the past couple of days is due to Ryan being in the hospital with a bout of pneumonia and some intestinal blockage. He’ll be there for at least another couple of days in order to clean him out of all that ails him. Please pray the antibiotics will kick whatever type of pneumonia he has, and that I can stay awake long enough to make sure the nurses give him the proper attention that the little king deserves. As you know, the name Ryan means little king. It does around here anyway.

Thank you for hanging in there with us. Without you we’d be lost…

I’ll try to get back to my daily musings, but if I don’t post for a couple/few more days, you know why.

Have a wonderful day/week on and with purpose! xoxo

Hey look ma, no spelling airers!