Ryan’s Miracle Watch 4/2/20

RELISH   noun:   spicy or savory condiment used on hot dogs, etc.

No, not that definition! Sorry about that.

verb:   derive or receive pleasure from; get enjoyment from; take pleasure in…


So, being stuck at home during the shelter-in-place (SIP) initiative has definitely got me missing certain things; going out to eat, working out at the gym, hugging people (no, not random people). What can I say? I’m a hugger.

On the flip side, it’s gotten me to realize what things I don’t need; things I don’t miss. Too many things to list here.

I’m going to make a list of things I RELISH and want to get back to once this SIP is lifted, as well as things I don’t relish. Think of it as a sort of Spring cleaning. Hey, it’s Spring! How appropriate…

Speaking of cleaning: I really enjoy cleaning Ryan’s room daily. It’s the least I can do for someone who’s done so much more for me…



Ryan’s Miracle Watch 3/29/20

1 Peter 5:8-9   Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that the family of believers throughout the world is undergoing the same kind of sufferings.

The next several weeks (basically April) will be the most challenging our entire Nation has faced in a long, long time. There’s always been a spiritual battle going on between good and evil; God and Satan.  The Coronavirus is just another satanic attempt to destroy our faith in God…to lure us away from Him…to take our eye off the mark. Just so you know, God’s kicking Satan’s you know what. In the end, God will be victorious and, therefore, we also will be. Therefore, don’t worry…but pray. Pray like you never have before. This is how we keep in contact with our Father in Heaven. We need to pray that He will put a cloak of protection over us, and to immediately provide a cure/vaccination for this disease. Until one is found, this virus will continue to ravage the world at large.

2 Corinthians 10:3-5   For though we live in the world, we do not wage war as the world does. The weapons we fight with are not the weapons of the world. On the contrary, they have divine power to demolish strongholds. We demolish arguments and every pretension that sets itself up against the knowledge of God, and we take captive every thought to make it obedient to Christ.

Ephesians 6:11-17   Put on the full armor of God, so that you can take your stand against the devil’s schemes. For our struggle is not against flesh and blood, but against the rulers, against the authorities, against the powers of this dark world and against the spiritual forces of evil in the heavenly realms. Therefore put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. Stand firm then, with the belt of truth buckled around your waist, with the breastplate of righteousness in place, and with your feet fitted with the readiness that comes from the gospel of peace. In addition to all this, take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of the Spirit, which is the word of God.

Ryan and I will be on our knees, and would love for you to join us…

Ryan’s Miracle Watch 3/26/20

I just posted something I had written yesterday and thought was posted. There is a glitch in this system. I believe it’s called usererroris. I’m sure someone is going to blame it on Trump. We all need to pray for our leaders! And, our country. And, the world at large.

Ryan and I had a good day…well, as good as it can get. After my shift, I went to the hospital to pick up some of his meds. I was surprised at the new procedures in place just to get into the hospital. Every walkway is blocked by flagging except for the one which leads directly to the front entry. Upon arriving at said front entry, I stood in line…in a boxed outlined on the ground with blue masking tape, spaced 6-feet apart. When I got to the front of the line, someone greeted me with hand sanitizer. Then, I was called to stand in another blue box where I was asked a series of questions…What was I there for? Have I had the sniffles? Fever? What kind of car do you drive? What’s your favorite color? What would you like for your last meal? Actually, I spaced after the fever question. Upon completion of answering all questions, I was awarded with a green ribbon that would identify me as a person who answered all of the questions, what I am assuming, correctly. I was so proud of my accomplishment. I knew I was smart, but just how smart, I had no idea. Some say I’m sharp as a marble. How honored I felt. That is, until Igot inside and saw other people with ribbons on too. Some had blue. Others red. Others white. I began to see a pattern and realized my green represented fourth place. Bubble burst…or is it bursted?

When I got to the pharmacy…repeat the entire process…with the exception of the ribbon. Already had mine…thank you very much.

The upside of the adventure…not much traffic at, what typically would have been like a parking lot, that time of day. And, I was in and out of the hospital in less than ten minutes…

PS – I threw my stupid fourth place ribbon away…


Ryan’s Miracle Watch 3/25/20

So, if you think living with the family unit during this 6-feet of separation rule is a challenge, try having to watch someone like Ryan. It took a few days to figure out how to do most things in his day-t0-day care, but I’m still trying to figure some things out. Here are some of the things we’re finally doing well from 6-feet away…

Turning: As you know, in order for him not to develop bed sores, he needs to be turned every two hours. Not a problem. I use my push broom to move him from side to side.

Feeding: I haven’t figured out how to get to his g-tube, so for now I’m using a squirt gun. My aim is getting better, and I’m getting less up his nose.

Medicine: Again, I use a squirt gun. He currently gets about 60% of the meds he needs, but I’ve been practicing on my lunch break and hope to get that up to at least 63%.

Physical Therapy: Sometimes I turn him back and forth a couple of times. Needless to say, his muscles are shrinking.

Still Trying to Figure Out…

Changing Clothes: For now, he’s naked.

Giving Shots: Shot the injector through an African Blow Dart Tube, but can’t figure out how to push the plunger to administer the medicine. He’s got six needles stuck in him at the moment.

Bathing: Tried using a hose, but turned out to be a bit messy. Also tried using the squirt gun, but takes too long; especially during the rinse cycle.

Grooming: Ain’t happnin’. Insert picture of Grizzly Adams. Did try using my limb trimmer for his toenails…have added bandages to my shopping list.

Any ideas/suggestions are always welcome…

Have an amazing week on and with purpose!